Parent of a child that died of SUDC, and spreading awareness of SUDC. Not a representative of the SUDC foundation.

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Joined 1 year ago
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Cake day: March 11th, 2024

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  • I found my three year old unresponsive during a nap and knew he was dead, but had to try my best to comfort my wife as she broke down screaming while trying to resuscitate him. It’s still hard to think about.

    If this happens to someone you know, please let them know about SUDC (Sudden Unexplained Death in Childhood). It’s like SIDS but for children older than 1 year. The SUDC Foundation has a website at https://sudc.org/ and provides community for parents, grandparents and siblings that have gone through it. In my case, having community might’ve been lifesaving.

    Sorry to come across like a PSA, but March will be SUDC Awareness Month, and this post made me think of it. I’ll be posting about it over in !sudc@midwest.social. It’s not exactly an upbeat Lemmy community, but I hope that it can help anybody else going through the same thing find the community they need.


























  • Sorry to hear about your loss. Feel free to talk as much or as little about your son here as you’d like. Finding community where I can share grief has helped me, hopefully finding out about this will help you too.

    Here’s a poem that comforted me. Maybe you’ll get something out of it:

    My little man,

    down what centuries of light did you travel to reach us here,

    your stay so short-lived;

    In the twinkling of an eye you were moving on,

    bearing our name and a splinter of the human cross we suffer;

    flashed upon us like a beacon,

    we wait in darkness for that light to come round,

    knowing at heart you shine forever for us

    - Hugh O’Donnell