A LITTLE VENT I was on reddit on the r/autism and i read something on the rules that made me doubt my autism (that the raads-r is not a reliable tool for diagnosis, but i accidentally glossed over the part that said “unless the results are evaluated in a clinical setting”, which happened in my case) and this user came and said that the RAADS (which is not the test i took) and the AQ (autism quotient, which i never took) have a high false positive rate, followed by, get this, links from a paper funded by autism speaks and old research. When i first read their reply i explained in the greatest detail i could the proocedings of my diagnosis, but then when i called my older brother (he’s kinda my anchor in this chaos that is my life and even assisted me during the diagnostic process) he reassured me that my diagnosis is valid because it was interpreted by a professional clinician and helped me sort it out. That’s when i found out that the papers the redditor sent were either pretty old in modern neuroscience terms or funded by autism speaks, and not only that, they seem to be one those “elitist” autistic people that bash self-diagnosed people in spite of them mostly not having the money for an assessment, and them just invalidating them thinking they were all influenced by social media to think so. I’ve felt so down these few days because of this self-doubt and seeing this really pissed me off, to send outdated research and autismspeaks funded research to a person struggling with doubt, it is downright cruel in my opinion. moral of the story: to hell with reddit unrelated pic
“A LITTLE VENT”
my chickens when laying eg
🐣🐣🐣
Autism is a spectrum. If the label of autism describes the symptoms you have and helps you to understand and contextualize them, who cares about what some test says tbh - but if your doc also thought it fit, then even less reason to doubt it.
Welp I’m self diagnosed and if someone wants to be elitist here I will gatekeep their ass right out. So at least you don’t have to worry about that here.
the thing is I’m not even self diagnosed yet they went for the jugular (i dunno if it’ll make sense in english) assuming i was
That makes sense.
Reddit is full of bots and fake users who spread lies and/or disinformation.
Part of why I left was because the “advice” I started was starting to get reeeeally strange and often aggressive.
Ditch Reddit when you’re able. It’s no longer a place where real user gather. It’s been astroturfed to hell.
I will say that it isn’t totally shit in some parts. However, the old Reddit is slowly dying. I miss the chaotic humor mixed in with lots of useful information.
I miss the old reddit… But “really strange and aggressive advice” would probably rank highly with the problems it had back then too.
Ye… that’s why I said “when you’re able”. I miss my niche communities with all my heart, but I knew they could crumble at any moment or be invaded with bad actors.
I think the big issue Lemmy has is that it severely lacks diversity. I’m not talking about race or gender necessarily but different personalities and view points. Right now it is just the tech nerds.
Oh, trust me… I completely understand. More than you may ever know. 🫠
the worst part is i talked to the moderators and they glossed over the autism speak paper thing. I’m glad my technosavvy brother told me about this app
To hell with Reddit indeed.
r/autism is a total joke
The moderation frankly sucks and ever other post is about suicide
I, possiblylinux127, diagnosis you with Autism
it’s crazy how nobody cares there! I’m literally pestering the subreddit bc its unacceptable
